What better day to raise awareness of rare diseases than February 28th, as it is the rarest day of the year?
Rare Disease Day raises awareness of diseases that affect less than 1 in 2000 people. Examples of challenges that are faced by patients with a rare disease include lack of scientific knowledge and lack of treatment experience, resulting in misdiagnosis or delayed diagnosis, inequality and difficulty in accesssing appropriate treatment and care. Rare Disease Day is a globally coordinated, patient-led movement, to promote equity in social opportunities, health care, and access to diagnosis and treatment for people living with a rare disease.
Annually, 2000-4000 pregnant women are diagnosed with cancer in Europe, in the context of the 4 000 000 neonates that are born each year, making cancer in pregnancy a rare disease. An important contribution to improve health care for patients with rare diseases consists of international collaboration between researchers and physicians. Sharing new insights and knowledge, and discussing treatment recommendations for cases are example of this, and the main activities of the ABCIP. Through the ABCIP we aim to strengthen the connection and collaboration in the field of cancer, infertility and pregnancy.
For more information on Rare Disease Day, please visit the website: https://www.rarediseaseday.org